Patient-led surveillance

Using the Behaviour Change Wheel to identify barriers and targeted strategies to improve adherence in randomised clinical trials: The example of MEL-SELF trial of patient-led surveillance for melanoma – Deonna M. Ackermann et al.

2024-06-04T12:14:37+10:00Cancer, Clinical trials, Melanoma, Patient-led surveillance, Publications, Randomised Control Trial (RCT), Research|

Adherence to self-management interventions is critical in both clinical settings and trials to ensure maximal effectiveness. This study reports how the Behaviour Change Wheel may be used to assess barriers to self-management behaviours and develop strategies to maximise adherence in a trial setting (the MEL-SELF [...]

Participant characteristics and reasons for non-consent to health information linkage for research: experiences from the ATHENA COVID-19 study – Kim Greaves et al.

2024-02-13T14:12:53+11:00COVID-19, Ethical considerations, Patient-led surveillance, Primary Care, Publications, Research, Research ethics|

The linkage of primary care, hospital and other health registry data is a global goal, and a consent-based approach is often used. Understanding the attitudes of why participants take part is important, yet little is known about reasons for non-participation. The ATHENA COVID-19 feasibility study [...]

Correction: Exploring the Integration of Environmental Impacts in the Cost Analysis of the Pilot MEL-SELF Trial of Patient-Led Melanoma Surveillance – Jake T. W. Williams et al.

2024-02-13T13:25:11+11:00Cancer, Carbon neutral, Correction, Melanoma, Patient-led surveillance, Publications, Sustainable health care|

In this article the Methods section of the Abstract was incorrectly given as “Economic costs were calculated alongside a randomised trial using standard cost analysis methodology from a societal perspective. Environmental impacts were calculated using a type of carbon footprinting methodology called process-based life cycle [...]

Can evidence drive health equity in the COVID-19 pandemic and beyond? – Katy Bell et al.

2024-02-11T15:23:27+11:00COVID-19, Health policy, Health system, Patient-led surveillance, Policy, Publications, Risk|

Using scoping review methods, we systematically searched multiple online databases for publications in the first year of the pandemic that proposed pragmatic population or health system-level solutions to health inequities. We found 77 publications with proposed solutions to pandemic-related health inequities. Most were commentaries, letters, [...]

COVID-19 rapid antigen tests approved for self-testing in Australia: published diagnostic test accuracy studies and manufacturer-supplied information. A systematic review – Katy JL Bell et al.

2024-02-11T15:19:33+11:00COVID-19, Diagnostic system, Patient-led surveillance, Publications, Tests|

The objectives of this study to are review evaluations of the diagnostic accuracy of coronavirus disease 2019 (COVID-19) rapid antigen tests (RATs) approved by the Therapeutic Goods Administration (TGA) for self-testing by ambulatory people in Australia; to compare these estimates with values reported by test [...]

Acceptability of a Hypothetical Reduction in Routinely Scheduled Clinic Visits Among Patients With History of a Localized Melanoma (MEL-SELF): Pilot Randomized Clinical Trial – Dorothy Drabarek, Deonna Ackermann, Ellie Medcalf, Katy J L Bell

2023-10-23T15:06:48+11:00Melanoma, Patient-led surveillance, Publications|

Participants suggested that prerequisites for a reduction in routinely scheduled visits with melanoma doctors would include that sufficient time had elapsed since the previous diagnosis without a new primary melanoma or recurrence, an unscheduled appointment could be made at short notice if the patient noticed [...]

Strategies to Improve Adherence to Skin Self-examination and Other Self-management Practices in People at High Risk of Melanoma – A Scoping Review of Randomized Clinical Trials – Deonna M. Ackermann et al.

2023-04-14T13:43:26+10:00Cancer, Melanoma, Patient-led surveillance, Publications, Screening|

Adherence, both in research trials and in clinical practice, is crucial to the success of interventions. There is limited guidance on strategies to increase adherence and the measurement and reporting of adherence in trials of melanoma self-management practices.

Exploring the Integration of Environmental Impacts in the Cost Analysis of the Pilot MEL-SELF Trial of Patient-Led Melanoma Surveillance – Jake T. W. Williams et. al

2023-01-11T11:28:34+11:00Cancer, Carbon neutral, Patient-led surveillance, Publications|

Human health is intrinsically linked with planetary health. But planetary resources are currently being degraded and this poses an existential threat to human health and the sustainability of our healthcare systems. The aims of this study were to (1) describe an approach to integrate environmental [...]

Assessing the Potential for Patient-led Surveillance After Treatment of Localized Melanoma (MEL-SELF): A Pilot Randomized Clinical Trial – Deonna Ackermann et al.

2022-02-24T16:16:03+11:00Cancer, Melanoma, Patient-led surveillance, Publications|

Patient-led surveillance is a promising new model of follow-up care after excision of localized melanoma; a larger randomized clinical trial will evaluate comparative effects on important health, psychological, and resource use outcomes.

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